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Netwd Health Directory
Craniosynostosis
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Asher's Craniosynostosis Home Page
Describes a family's experience with CS. Includes information and links about the condition and its treatment.
Brynne and Craniosynostosis
Personal experiences of a family and a child born with craniosynstosis.
Cranio Online
For parents of children born with cranial deformities. Includes support group and FAQ. [English and German]
Craniosynostosis
Causes, pictures and long term consequences.
Craniosynostosis
Information sheet compiled by National Institute of Neurological Disorders and Stroke.
Craniosynostosis
Article from the American Family Physician.
Craniosynostosis
Article from eMedicine.
Craniosynostosis
Definition, description, diagnosis, treatment and support. Includes photos of patients and illustrations of the cranial sutures involved in this condition.
Craniosynostosis, Endoscopic Strip Craniectomy
Information on surgical procedures.
Devin's Craniosynostosis
Devin was born with a condition called Craniosynostosis (Sagittal Synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada.
FACES: The National Craniofacial Association
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders.
Healthubs
A brief definition of craniosynostosis, followed by links to research articles, photos, clinical trials and case reports.
Michal's Story
English and Hebrew information on craniosynostosis based on the personal case of Michal Glanz from Israel.
Plagiocephaly Information Web
Information on the diagnosis and correction of abnormal head shape.
Questions and Answers - Craniosyntosis
Frequently asked questions about craniosyntosis, patient and physician resources, and news.
Sagittal Synostosis Homepage
Information (including details of genetic research) and support for people affected by this condition.
Tiffanni's Cranio Page
About a baby with the condition including post-operative photos.
World Craniofacial Foundation
Provides assistance for those in need of treatment.
Did you know?
Complications Polycythemia rubra vera may vary from person to person and may include development of blood clots or bleeding.
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