| |
| |
|
Netwd Health Directory
Organizations
|
|
| |
|
Boomer Esiason Foundation
A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
Canadian Cystic Fibrosis Foundation
Support and resources. Located in Toronto, Ontario.
CCFF Sudbury Chapter
Website of the Canadian Cystic Fibrosis Foundation Sudbury Chapter. Provides information on local events and information about Cystic Fibrosis.
Chicago Cystic Fibrosis Awareness Day
Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.
Cochrane Cystic Fibrosis & Genetic Disorders Review Group
An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
Concerned Friends of Cystic Fibrosis in Israel
Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information.
Cystic Fibrosis Australia
Information about the organization and its aims and objectives, CF facts, events, links and contact details.
Cystic Fibrosis Foundation
Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.
Cystic Fibrosis Nurses: the International Specialist Group
Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis.
Cystic Fibrosis Trust
National charity in the United Kingdom which funds research into the disease and provides information and support for patients and families.
Cystic Fibrosis Victoria Inc
Information about Cystic Fibrosis and the organisation, online chat room and message board.
Cystic Fibrosis Victoria Inc
Current information on Cystic Fibrosis, Cystic Fibrosis Victoria the organisation, online chat room, message board, '65 Roses Magazine', SSL Secure Online Shop and donations, events
Cystic Fibrosis Worldwide
International Association of Cystic Fibrosis Adults web site and International Cystic Fibrosis Mucoviscidosis Association.
Dream Holidays Charity
The Dream Holidays Charity helps families who have a child with Cystic Fibrosis, a genetic life threatening disease. We arrange holidays and wishes for these children with no cost to the family.
Elizabeth Nash Foundation
Supports causes reflective of Elizabeth Nash's interests and values with a specific emphasis on efforts that improve the lives of those affected by Cystic Fibrosis.
European Cystic Fibrosis Society
ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis
European Cystic Fibrosis Thematic Network
Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.
The Genentech Endowment for Cystic Fibrosis
An independent, non-profit endowment dedicated to expanding access to Pulmozyme® (dornase alpha) therapy to qualifying un-insured and under-insured CF patients. Find the eligibility and how to apply.
I.C.F.M.A.
A not-for-profit organization for increasing cystic fibrosis awareness.
Lungs for Life Foundation
Provides financial assistance to cystic fibrosis and lung transplant patients.
Milan Foundation
Created in the name of Milan Brown who, at the age of 3 1/2, was diagnosed with Cystic Fibrosis. Includes a calendar, stories and poems about CF, how to donate, and the foundation's mission.
National Cystic Fibrosis Awareness Committee (NCFAC)
Helps to advance the public awareness of the genetic disease. Site includes mission statement and message board.
New Jersey State Organization of Cystic Fibrosis
NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a Q&A's, news, services offered and coming events.
Reaching Out Foundation
Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate.
Victoria Chapter, Canadian Cystic Fibrosis Foundation
The Victoria Chapter, one of 51 Chapters of the Canadian Cystic Fibrosis Foundation, works to provide a brighter future for every person born with cystic fibrosis. It assists in the quest to find a cure or control for the disease.
The Victoria Foundation
Helps young adults with Cystic Fibrosis and assist parents in caring for their son or daughter at home, with the support of the Southampton CF adult team.
Did you know?
Insulin helps glucose to enter cells, where it is used for energy.
|
|
|
|