Netwd Health Directory
Leukodystrophy

 
 

Aicardi-Goutieres Syndrome
News, descriptions, contacts, and other information concerning this leukodystrophy.

Alexander Disease
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Call Again Soon
Directed at making life better for people affected by Leukodystrophy and those who know and love them.

Devoted to Brianna
Medical experiences and terminology helpful for parents to understand and cope with genetic disorders. One little girl's story, concerning Canavan Leukodystrophy offers help and hope to many.

Dylan Samuel Freeman
Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs.

Family Village / Library / Leukodystrophy
Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease.

Leukodystrophy
CHORUS document on the different types of Leukodystrophy. A little technical.

Leukodystrophy
A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Leukodystrophy Hub
A brief definition followed by links to research articles, overviews and case reports.

MCW HealthLink - Alexander Disease
Information sheet from the Medical College of Wisconsin.

Undiagnosed Leukodystrophy
Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic.

United Leukodystrophy Foundation
Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health.


Did you know?
In patients with insulin resistance, although insulin can attach normally to receptors on liver and muscle cells, certain mechanisms prevent insulin from moving glucose into these cells where it is utilized.
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